Patient Story
Hope for a rare genetic disease
Addison Weith’s genes put her at risk for health troubles. Her family’s vigilance during the pandemic has kept her healthy for the longest stretch ever.
Addison Weith’s genes put her at risk for health troubles. Her family’s vigilance during the pandemic has kept her healthy for the longest stretch ever.
Though they live under the shadow of Huntington's disease, the Shurlow family runs toward a hopeful future.
Born with an ultra-rare condition that caused her brain to outgrow her skull, little Kenzie Bennett is 'still smiling at life.'