Tag:

rare condition

Children's Health
Patient Story

One in a million: an extremely rare and unpredictable condition

A young chlld and her family face an extremely rare and unpredictable condition.

  • Rick Jensen
  • By: Rick Jensen
  • February 28, 2023
  • 1
Research & Technology
Patient Story

Finding answers and hope

Genetic testing helps the family of a Michigan boy dig deeper into his unique health challenges.

  • Zinta Aistars
  • By: Zinta Aistars
  • June 9, 2021
  • 1
Digestive Health & Disorders
Patient Story

Surviving the unsurvivable

Born with her liver and other organs outside her body, Karlee endured more than a dozen lifesaving surgeries. Today, she’s a vibrant 7-year-old.

  • Eve Clayton
  • By: Eve Clayton
  • July 1, 2019
  • 6