Tag:

rare genetic condition

Patient Story

‘We celebrate every milestone’

For a Michigan couple eager to help their son, genetics research is lighting the path ahead.

Patient Story

‘A completely different baby’

Born with a rare and life-threatening immune system disorder, baby Emmett gets a new start with a bone marrow transplant.

Patient Story

‘She was given to us for a reason’

One family shares their journey of getting their daughter back to eating and drinking with help from the Intensive Feeding Program.